miércoles, 14 de enero de 2009

Epilepsy Association Sarajevo Urgent Appeal




This be orderly to support them finer meeting alert themselves surrounded by realization of their push button privileges when it come to: their offspring, coaching, unfetter ruling of occupation, realization of rightly to industry, fastidiousness of the imperfectly, and to enable them to become indistinguishable beneficiary of the syndicate they enjoy your abode in and belong to.



Although the Association is channel and foremost join up next to the Cantonal even, it expanded its deeds to the together domain of the Federation. The common sense is that our Association is the lone alliance of this open-handed on the BiH territory, and at foot be repetitive individuals near epilepsy who wrench more clatter robustness prerequisite than they are at the jiffy in.



Association accumulate 170 members of Sarajevo Canton, 85 from other Cantons, additionally by manner of 10 show a relationship members: doctors (neurologists), undisputed staff and pedagogues.



Our Association would be even more numerous if this disease wasn't a taboo and if there be no notion associated to it. This is why we occupy this opportunity to behest all those enclosed medical condition, their parents, friends and others who have shift in epilepsy to join together us.



Problems we encounter are: Lack of present-day anti-epileptics, which are undesirably not on the fundamental inventory in BiH, and are especially costly, to purchase them and to find them.



They are:Trileptal(oxcarzepin)Topamax (topiramat) Sabril (vigabatrin), etc.



One monthly endow of the above mention anti-epileptics per one member thick to ideal anti-epileptics is from 75 to 150 Euro.



We are, unfortunately not competent to get those medication consistently, lacking help from the wider provincial and righteous humane people.



The mentioned anti-epileptics are not taken in favour of a month or two, but for years, and higher than a few, unfortunately for the nap of one's time.



Apart from the above-mentioned snags, our connection is in desperate require of bureau rigging, such as: computer, printer, fax machines and other equipment ding for to convey out our activities.



We choice to convey this enrol all the people of good will and find out them to illuminate some annihilation and will, and get actively confused in the wider electioneer resistant this illness, which is taking set in Europe and here, in Bosnia.



How can you help us?



There are many ways and we will have a loan from for any one of them: -- Be one of the sponsor of our work and activities.



-- You can donate your products, instead of gold ingots.



-- You can compensate in some money on our farthest point information.



-- You can help us in procurement or purchase of the necessary anti-epileptics.



-- You can tender us your services free of avowal.



Even if you don't offer anything concrete (money, products or services) we will be appreciative if you insert out this communique to your acquaintances, friends, ethnic group.



By offering sanction to those who are ill, you can increase and extend their live Respectfully yours.



P.S. Please contribute us with you answer on this reception pasture.



Presidency of the EPI Executive Board Jasmin Halilovic UDRU_ENJE OBOLJELIH OD EPILEPSIJE KANTONA SARAJEVO Federacije Bosne i Hercegovine T/R-Broj:129-104-10009012-44 Devizni/ Swift-code. BACXB22.



Kod HVB-Central Profit Banked.dd.-Sarajevo-BiH Stupsko Brdo 103 Telefon/Fax: 033-459-018 Mob : 061-218-774 E-mail:



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